living with Pulmonary Hypertension

Support for family and friends

When someone is diagnosed with a condition like pulmonary hypertension, it can affect family and friends as well as the patient themselves.

Feelings of concern, sadness and anger are all very normal emotions, and can continue throughout a loved one’s journey with PH.

Membership of PHA UK is open to anyone affected by PH, including friends and family of those diagnosed. And all members can access support from our charity partners, Anxiety UK, for help with difficulties related to stress and anxiety.

Call the dedicated helpline service on 0844 332 9010 or access email support via phauk@anxietyuk.org.uk

Finding out more about pulmonary hypertension can help you understand and support someone living with the condition. As well as the information found on this website, we also produce publications and resources around specific topics – including welfare and benefits, relationships, clinical research, emotional impact, and much more. Please contact us to request a publication or resource.

Our member magazine, Emphasis, is also a good source of information and support for family and friends. In this special article, clinical psychologist Emma Offord discusses the emotional effects of PH on partners.  All back issues of Emphasis can be accessed here.

Care givers

Caring for someone with PH can be physically and emotionally demanding, especially as, for many, the condition can deteriorate over time.

If the patient is in contact with a social worker, they can offer guidance, support and advice to you as a carer. You may also be eligible for financial assistance in the form of benefits; click here for more details.

At PHA UK we can also signpost you to further help and support. Please contact us to find out more.

“How we cope”

As a teenager, Hope saw her mum undergo a double lung transplant. Read her story here

Bunty helps care for her husband of 56 years, with the help of family and friends. Read her story here

Suzanne and John were there for 25-year-old daughter Sarah when she was diagnosed with PH. Read their story here

Teenager Chris watched his baby sister live with PH for two years. Read his story here

Young couple Sophie and Alex are supporting each other following Sophie’s diagnosis. Read their story here

Last medically reviewed: July, 2017 • Due for review: July, 2020

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