living with Pulmonary Hypertension

Support for family and friends

Caregivers

If you are caring for someone with pulmonary hypertension (PH) you may face a number of different challenges. These challenges may be emotional and physical, and can need a great deal of your time. In caring for someone with PH, you need to remember that PH is a long-term condition and that for many it can deteriorate over time.

There is help and support available for caregivers of people with PH. The person with PH should be in contact with a social worker who can offer guidance, support and advice. You may also be eligible for financial assistance in the form of benefits. Visit the benefits section of our website for more information. Your PH specialist team are there to answer any questions you may have. The Pulmonary Hypertension Association (PHA UK) can also offer help and support, and can direct you to more sources of help, depending on your circumstances. Contact us to find out more.

Family members and friends

Having a friend or family member with PH can lead to a number of issues. You may want to learn more about PH and get an idea of the likely outcome for the person. The PHA UK website is a good place to start. We also produce a book called Understanding pulmonary hypertension: Information for patients, which contains more detailed information about PH and its treatment. If you would like to receive a copy, please fill in the publication request form.

The PHA UK provides a range of materials not just aimed at people who have PH. Many of our members are relatives or friends of people with PH. To see the range of publications that the PHA UK offer, visit Our publications.

Last medically reviewed: July, 2016 • Due for review: July, 2019

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