New research: Living through the pandemic with PH

We need people to understand what it’s been like for the PH community during the COVID-19 pandemic. Can you spare some time to help?

  • If you have pulmonary hypertension, please complete this survey
  • If you are the parent or guardian of a child with pulmonary hypertension, please complete this survey
  • If you live with someone with pulmonary hypertension (for example a partner or family member), please complete this survey

Please share your voice before Friday 31st July 2021

We’ve all navigated the COVID-19 storm in different boats, and as a society we need to understand the impact of the last 18 months so that lessons can be learned.

It’s essential that we capture the experiences of the PH community during this unprecedented time, and we really need your help to do this.

Last year, three months into the pandemic, we conducted important research to help us understand your experiences of shielding – providing vital insight into the effects of the early stages of COVID-19.

A year later, and 18 months since the virus reached our shores, it’s important to understand the wider picture.

We want to hear from all parts of our PH community – patients, parents, loved ones, and carers too.

Thank you for helping us to make the voices of our PH community heard.

If you have any questions about this survey, our team will be more than happy to help. Call 01709 761450 or email


Last medically reviewed: June, 2021 • Due for review: June, 2024