Make a pledgeI will share my experiences of pulmonary arterial hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will explain about RHC and living with my epoprostinal infusion. I will be in pain I will turn blue from time to time but I am still me and I will live my life to the fullest I can manage which will be difficult and different each day.
