I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will help other Irish patients traveling to the UK for the surgery, guiding them thru the process.
6 November 2019I will work to make physical activity, exercise and rehabilitation a normal part of the care that we provide for patients with pulmonary hypertension. This will need a difference in the behaviours and attitudes of patients, families and carers, clinicians and commissioners who provide services for patients with PH
5 November 2019I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
5 November 2019I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
5 November 2019I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
5 November 2019I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
5 November 2019I will share my experiences of living with pulmonary hypertension by talking to others about what it means to live with a rare and incurable disease. I will encourage people to share their wishes on organ donation and help those around me to understand that not all disabilities are visible.
5 November 2019Not enough people know about PH. So this month I’m going to open up about the illness and tell people the effect it has on me even though it can’t be seen.
5 November 2019I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
5 November 2019I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
5 November 2019