Pulmonary Hypertension Association | Influence. Hope. Integrity Donate

My pandemic

Our new research project aims to dig deeper into experiences of the COVID-19 crisis within the PH community.

**Recruitment for this project has now closed. Thank you to everyone who has volunteered to speak to us; a member of the team will be in touch with you very soon**

Would you like to talk to us about the last couple of years?

As we mark two years since the start of the first lockdown, we want to build on our previous research to understand the personal stories behind the COVID-19 pandemic.

In 2020, you told us what it was like to shield during the first three months of the crisis. And last year, over 1000 of you shared your wider experiences of the pandemic.

To complement this valuable data, we now need personal stories to really understand the impact of the last two years on the UK’s pulmonary hypertension community.

The outcome from this research project will help us inform future services developments in the world of PH.

If you would be willing to have a telephone conversation with someone from the PHA UK team about ‘your pandemic’, please fill in the form at the bottom of this page.

We would like to speak to a total of 30 patients, and their loved ones too. We’re looking for people who are:

  • Aged over 18
  • Live in England, Wales, Scotland or NI
  • Have a diagnosis of pulmonary hypertension OR
  • Are a partner, parent, carer, family member or friend of someone with pulmonary hypertension

You will have the option to remain anonymous if you wish.

Your story will be used as part of a novel PHA UK project to make sure experiences of the pandemic are heard. We hope this will give us new insights into the impact of the pandemic on people living with pulmonary hypertension, and help to inform planning for future health emergencies.

We also plan to publish an anthology of stories, and to explore artistic interpretations based on emerging themes from this research. This will provide further opportunities for the PH community to get involved, and as well as providing lasting evidence of this period of history, this work will also help to raise awareness of PH amongst the public.

If you would like to be part of the first stage of this exciting research by talking to a member of the PHA UK team, please complete the form below before 8th April 2022. 

We are looking for a total of 30 people to speak to for this project, so if we receive more responses, we will select 30 people at random. However, there will be other ways to get involved in this research later on – so everyone’s response is valuable.

We will contact you by email, before the end of April, to let you know the outcome. If you have been selected, we will then set up a telephone call at a convenient date and time.

**Recruitment for this project has now closed. Thank you to everyone who has volunteered to speak to us; a member of the team will be in touch with you very soon**