The UK benefits from a wide range of charities and supportive organisations that specialise in some of the issues you may face when living with pulmonary hypertension.
You’ll find a selection of these valuable sources of support below. If you think we have missed something important, or you would like to recommend an organisation that has helped you, please contact media@phauk.org.
Mind offers information and support for people with all types of mental health challenges.
Anxiety UK is a charity for those with anxiety, stress or anxiety-based depression
My Black Dog is a peer-to-peer online chat service that supports people who are struggling with their mental health.
Samaritans provides support to anyone in emotional distress, particularly those at crisis point
Turn2us provides information and support about welfare benefits and charitable grants. You can also access their tools via the PHA UK website here.
Citizens Advice Bureau can help with a wide range of issues including financial and employment difficulties.
ACAS gives free, impartial advice on workplace rights, rules and best practice. They can advise on your rights at work or disputes with employers.
Scope provide practical information and support around finances and employment, especially for disabled people.
You’ll find a list of supportive charities for carers here
Cruse Bereavement Care and its counterpart Cruse Bereavement Care Scotland are the UK’s largest bereavement charities, providing free care and bereavement counselling to people suffering from grief.
At A Loss is a website that connects people to the right bereavement support for them.
You can find information about StrongMen, an organisation for bereaved men, in this article.
The PHA UK provides some small grants to people with PH. Contact us to find out more.
Motability is a charity scheme that can help if you receive either the enhanced rate of the mobility component of Personal Independence Payment (PIP), or the higher rate of the mobility component of Disability Living Allowance (DLA). The allowance can be exchanged for a car, mobility scooter or powered wheelchair, and can also cover driving lessons and adaptations to your car.
Contact (formerly Contact a Family) is a charity supporting families with disabled children, including children with PH. Their freephone helpline is 0808 808 3555.
The Family Fund provides grants to families on low incomes raising a disabled or seriously ill child. Eligibility is based on your household income and your child’s level of need rather than on a particular benefit. You can call them on 01904 550055.
