PHA UK supported research

We support scientific and academic research into pulmonary hypertension in multiple ways, providing grants and other backing to both individuals and partner organisations.

Please scroll down to find out more about some of the cutting edge trials and studies we are currently supporting, or have supported over the last few years.

If you’d like the PHA UK to support work you’re currently looking to undertake please visit our Research Support page here and complete the enclosed form.

Understanding adult congenital heart disease and pulmonary hypertension information needs

We’re working with a group of specialist doctors to help develop information materials for people with PH and congenital heart disease (CHD), and this research focused on what patients and caregivers want from these resources.

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Patient thoughts on research into intravenous (IV) therapy for PH

We supported the Sheffield Pulmonary Vascular Disease Unit to gather patient opinions on a proposed new study.

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Overcoming depression and low mood

This pioneering study aims to test a unique self-help programme designed specifically for people with pulmonary hypertension.

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Your chance to help genetic research in PAH

An invitation from Dr Emilia Swietlik of the Heart and Lung Research Institution at the University of Cambridge.

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Are sit-to-stand tests as safe and effective as walk tests for people with PH?

A study supported by the PHA UK has investigated whether a one-minute sit-to-stand test can be as effective as a walk test in assessing patients with pulmonary hypertension.

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Self-compassion and pulmonary hypertension

We worked with researchers to investigate the impact of PH on individuals and their caregivers, and whether ‘self-compassion’ can be a helpful way of coping.

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*Recruiting now* Could supervised home exercise help people with PH?

The SPHERe trial is testing whether home exercise programmes, supervised by experts, are effective for people with pulmonary hypertension.

Find out more about taking part

Clinical trials: What matters to you?

We’re helping Cambridge researchers understand what matters most to patients when it comes to clinical trials, to help shape a promising upcoming study and influence future design too.

See the survey results

Helping people get the best outcomes from their PH treatment

Our support enabled researchers to understand what patients thought about their proposed study aimed at personalising treatments for PH – helping to secure ethical approval and vital funding.

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Hybrid Heart: A robotic heart that could prevent deaths from heart failure

Researchers in the Netherlands are seeking funding to create a solution for heart failure by developing a pioneering soft robotic heart – and in May 2021 we gathered the opinions of the PH community to help them with their bid.

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National Cohort Study of Idiopathic and Heritable Pulmonary Arterial Hypertension

This study aims to investigate the genetic causes of PAH, and how genetic variation affects outcome and response to treatment.

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Is it possible to diagnose PH earlier? The natural history of breathlessness

This study, led by the Royal Free Hospital, aims to discover whether looking at existing clinical data derived from people living with PH might help speed up diagnosis in the future.

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Detecting PH earlier in people living with systemic sclerosis

Researchers at the Royal Hallamshire Hospital are aiming to set up a study looking at the use of cutting-edge magnetic resonance imaging (MRI) scans and new disease markers in the blood to help PH be detected earlier.

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Genetics and PAH: Identifying information needs

This survey was conducted in collaboration with Professor Nick Morrell, British Heart Foundation Professor of Cardiopulmonary Medicine at the University of Cambridge.

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