In February 2020, the PHA UK conducted an online survey to ascertain what people with Pulmonary Arterial Hypertension (PAH) understand about the role of genetics in PAH, and to identify any information gaps. The survey was conducted in collaboration with Professor Nick Morrell, British Heart Foundation Professor of Cardiopulmonary Medicine at the University of Cambridge.
“The results of this survey show a strong desire amongst people affected by PAH to understand more about this important subject. There is an obvious need for clear and accessible information. The PHA UK will now work with leading UK experts to produce resources that meet this need and that can be shared with family and friends. We would like to thank everyone who took part in our survey. “ – Iain Armstrong, Chair, PHA UK