At the PHA UK, supporting people to live well with pulmonary hypertension is one of our main aims – so we would like to help people access palliative care if they would benefit from it.
At the end of 2020, we conducted an online survey to find out what PHA UK members already understand about this type of care, so we can ensure we produce the right resources and support.
There were 97 responses – a good number considering the subject – and they proved there is a real need for work in this area.
These findings will inform the development of resources and support systems that improve quality of life for people with PH and their loved ones too. Thank you to everyone who shared their voice in this survey.