Here at the PHA UK we are committed to providing high quality resources and support materials for people affected by pulmonary hypertension.
Whether it’s a booklet, poster, video, or web page, we need to be sure that it meets the needs of the PH community.
That’s why we’re looking for a mix of people affected by PH – patients, and their loved ones too – to give us feedback on new materials before they are launched. Your opinions are really important, and they help us make sure we’re getting things right.
Obtaining feedback in this way is also a key requirement of our prestigious Patient Information Forum quality mark (the ‘PIF tick’) – a mark of our commitment to high standards.
What will I have to do as part of the Feedback Forum?
We’ll be asking you to spend a little time reviewing our materials before they are launched. This may be in the form of reading a leaflet, watching a short video, or having a look at a web page.
You will then be asked to fill in an online form with your thoughts.
Sometimes, we may ask your thoughts on an idea for a campaign or project during the planning stages, to ensure we are taking things in the right direction.
This can all be done in your own time, from the comfort of your own home.
Occasionally, we may ask if you’d like to talk to us on the phone, or via Zoom.
There will be no obligation to review any material. We will contact all forum members with opportunities via email, and it is up to you whether you respond. We appreciate that PH comes with bad days (and longer!) so we understand if you need to give some of our invitations a miss.
Who can be part of the Feedback Forum?
We’re looking for people with pulmonary hypertension of all ages, and their family / friends / carers too. All we ask is that you live in the UK and you are able to use the internet to share your feedback via email or an online form.
Our privacy promise
At the PHA UK we take your personal data and your privacy very seriously.
You can trust us not to sell, share or pass on your personal details. We think of the PHA UK as a family, built on trust and respect – and for that reason, your data will always be safe with us.
That’s a promise!