Pulmonary Hypertension Association | Influence. Hope. Integrity Donate

News

New publication to help people live well with PH

Our new guide to palliative care aims to help people with PH understand how this type of care could help them and their families.

17 May 2022

Study seeks to investigate ways of coping with PH

A new study is investigating the impact of PH on individuals and their caregivers, and whether 'self-compassion' can be a helpful way of coping.

3 May 2022

Birmingham run will raise funds and awareness

A fundraising run in Birmingham will celebrate the life of a local woman who died from pulmonary hypertension.

13 April 2022

World-first anxiety self-help programme now available from the PHA UK

The world's first self-help intervention designed specifically for people with pulmonary hypertension (PH) is now available to order for free.

29 March 2022

Co-ordinated efforts to help PH patients in Ukraine

A coordinated effort between The Pulmonary Vascular Research Institute (PVRI) and industry partners aims to ensure pulmonary arterial hypertension patients affected by the war in Ukraine receive supplies of life-sustaining drugs.

20 March 2022

Fixed term benefit reviews for people with long-term conditions in Scotland to end

People in Scotland claiming benefits for long-term health conditions like pulmonary hypertension will no longer need to endure fixed term reviews for their payments.

17 March 2022

Survey seeks patient opinions on clinical trials

A new survey is aiming to discover what matters most to patients when it comes to taking part in clinical trials.

14 March 2022

Hallamshire Heroes take on hilly half marathon

Staff from the specialist centre in Sheffield will tackle 13.1miles for our charity this month.

9 March 2022

Our thoughts on the upcoming changes to covid rules

The Prime Minister has announced significant changes to COVID-19 regulations that will bring an end to all rules and restrictions in England.

22 February 2022

Specialist centre standards remain high

The latest data from the National Audit of Pulmonary Hypertension shows specialist treatment centres in Great Britain have maintained high standards through the COVID-19 pandemic.

21 February 2022

Supervised home exercise trial seeks participants with PH

People with PH are being invited to take part in an important trial testing the effectiveness of supervised home exercise programmes.

9 February 2022

People with underlying health conditions urged to sign up to COVID-19 antiviral study

Adults over the age of 50 or with an underlying health condition who test positive for COVID-19 are being urged to sign up for a world-first study into life-saving antiviral treatments.

25 January 2022

Green light for a ground-breaking study to maximise PH treatment results

A PHA UK-supported study using remote monitoring technology to help patients get the best results from their PH medication has received the go-ahead from funders.

21 December 2021

PHA UK website rated best in the world for information

A global study has named the PHA UK website the best quality PH association site in the world for information about pulmonary arterial hypertension.

15 December 2021

New infocast: Making sense of Omicron

In this new infocast, pulmonary hypertension and vaccines expert Dr Mark Toshner talks to PHA UK Chair Dr Iain Armstrong about the current situation with the Omicron COVID-19 variant.

14 December 2021

Report reveals impact of pandemic on UK’s PH community

Research by the PHA UK has revealed the full impact of the pandemic on people affected by pulmonary hypertension in the United Kingdom.

8 December 2021

Vaccine news: Boosters now available to over 40s in England

From today (22nd November) anyone in England aged 40 or over can book a COVID-19 booster jab.

22 November 2021

What a week!

We'd like to say a huge thank you to everyone who supported PH Awareness Week between 1st and 7th November.

1 November 2021

PHA UK co-founder receives prestigious national recognition

Dr Iain Armstrong was high commended for his work developing the EmPHasis-10 quality of life measure.

14 October 2021

Your right to rehab: Pledge your support for our campaign

Pledge your support for a new PHA UK campaign to ensure people with pulmonary hypertension get fair access to rehabilitation.

7 September 2021

Important message about blood test tube shortages

A statement from consultant pharmacist and PHA UK associate Dr Neil Hamilton.

2 September 2021

New web area to help with decisions around work

A new PHA UK web area has been launched to help people make decisions about working with pulmonary hypertension.

1 September 2021

Challenge dedication sheets now available

Wearable dedication sheets for people taking on fundraising challenges for the PHA UK are now available to order.

18 August 2021

Pet show fundraiser winners revealed

Following a week of public voting, the lucky winners of our online fundraising pet show have been revealed.

9 August 2021

Over 1000 responses to pandemic research surveys

Our surveys to understand the impact of the COVID-19 pandemic on the PH community have now closed, with over 1000 responses received.

2 August 2021

PHA UK co-founder shortlisted for national award

PHA UK co-founder and chair Dr Iain Armstrong has been named as a finalist in the ‘Innovations in your Specialty’ category of the Royal College of Nursing (RCN) Nursing Awards.

28 June 2021

New fundraisers launched for pet lovers

The PHA UK has launched two pet-themed fundraisers to appeal to animal lovers looking to support people with PH this summer.

14 June 2021

New research to understand impact of pandemic

The PHA UK has launched new research to understand the impact of the COVID-19 pandemic on people affected by pulmonary hypertension.

7 June 2021

Research reveals support for robotic heart proposal

A survey amongst the UK pulmonary hypertension community has shown overwhelming support for the development of a soft robotic heart that aims to reduce deaths from heart failure.

3 June 2021

New online group for people affected by loss due to PH

A new private Facebook group has been set up for those who have experienced loss due to pulmonary hypertension.

4 May 2021

The Oxford/AstraZeneca COVID-19 vaccine and blood clots: Understanding the latest information

Our reaction to the announcement that those under 30 will be offered alternatives to the Oxford/AstraZeneca COVID-19 vaccine.

8 April 2021

Song launched in celebration of Will

A song recorded by Will Acres just before his death from pulmonary hypertension has been released by his family to mark his birthday.

30 March 2021

Shaping the future of health and care

Members of the public are being urged to share their views on healthcare as part of an online listening event.

25 March 2021

Survey seeks thoughts on proposed study into PH treatment

The PHA UK has launched a new survey to help researchers who are looking at the use of cutting-edge remote monitoring technology to help patients get the best results from their medication.

18 March 2021

New issue of Emphasis now available

The spring 2021 issue of our member magazine is out now, available in print and online.

17 March 2021

New service to help our members through difficult times

Our new Listening Line gives members dedicated telephone time with a PH professional to talk through any worries or concerns.

26 February 2021

New resource to help people prepare for benefits assessments

A new resource, published by the PHA UK, aims to help people prepare effectively for their benefits assessment.

22 February 2021

“Our experiences of COVID-19”

We asked for the experiences of people with PH who have contracted COVID-19, and this is what they told us...

22 April 2022