An open letter to Work and Pensions Secretary Mel Stride

Our response to proposed reforms to the disability-benefits system.

1 May 2024

The study taking strides towards personalised medicine for PH

‘PHoenix’ is an innovative new trial testing how well PAH drugs can be personalised for patients – and it’s set to roll out across more of the UK’s specialist centres soon. We spoke to Dr Frankie Varian of the Sheffield Pulmonary Vascular Disease Unit to find out more about the study’s aims, and how it’s been shaped by patients from the start…

18 April 2024

Five minutes with… Advanced PH Pharmacist Josh Miller

Josh is an Advanced Pharmacist at the Scottish Pulmonary Vascular Unit and has been part of the service for six months, covering a colleague’s maternity leave. We caught up with him to talk teamwork, typical days, and crispy M&Ms…

15 April 2024

Could you take on our Chairman’s Challenge?

A new fundraiser launched by the PHA UK is aiming to get people active this Spring.

3 April 2024

Important information for patients prescribed intravenous epoprostenol (Flolan brand)

There is a supply issue affecting Flolan, which is also called epoprostenol. 

27 March 2024

PH nurses set to pound the pavements for patients

A trio of nurses from the Sheffield Pulmonary Vascular Disease Unit are taking on a hilly half marathon for our charity.

25 March 2024

National award win for PHA UK Chair

PHA UK chair Dr Iain Armstrong has been named ‘Cardiovascular Nurse of the Year’ at the prestigious British Journal of Nursing (BJN) Awards 2024. The BJN Awards aim to showcase nursing excellence, highlighting the critical contribution that nurses make to healthcare. The winners were announced at a ceremony in London on Friday, 22nd March. Iain, […]

24 March 2024

High standards of PH care continue across GB

The latest National Audit of Pulmonary Hypertension sends a reassuring message that standards of PH care remain high – despite huge pressures on the NHS

27 February 2024

Acceptance and understanding: Screensavers with meaning

PHA UK member Kevin McAllister has created a meaningful piece of artwork exclusively for our charity, and it's available to download completely free.

7 February 2024

New book to help children understand PH

A PHA UK collaboration has enabled the launch of a new book to help children with pulmonary hypertension (PH) understand more about their condition.

18 January 2024

An update on the PAH drug sotatercept

The PAH therapy sotatercept is the first drug to target the root cause of the disease, and trials have produced promising results. But as 2023 draws to a close, are we any closer to it being made available for patients?

4 December 2023

An open letter to Jeremy Hunt, Chancellor of the Exchequer

Our response to Government plans to 'get more people on disability benefits back to work'.

29 November 2023

New research shows people still wait too long for a PH diagnosis

New research by the PHA UK shows that people are still waiting too long for a diagnosis of pulmonary hypertension (PH).

3 November 2023

Important information about the water tablet bumetanide

Please read this if you are prescribed this diuretic as part of your pulmonary hypertension care.

19 October 2023

PH consultants take to the pedals for patients

Consultants from specialist centres across the UK are set to cycle from Sheffield to Dublin in September.

18 September 2023

New leaflet shares advice from lived experience

A new PHA UK advice leaflet has captured words of wisdom from people with PH, to help those newly diagnosed with the condition.

11 September 2023

Declaring your PH to the DVLA: An update on driving with pulmonary hypertension

An update on what you need to know about driving with PH.

2 August 2023

Kenna’s leap of faith for her mum

Kenna Stewart will be thinking of her mum when she jumps from a plane to raise money for the PHA UK this summer.  

8 July 2023

Study will test pioneering self-help programme for people living with PH and depression

The PHA UK has partnered with psychology researchers at Cardiff University and Nottingham Trent University to trial a new self-help programme aimed at supporting people with pulmonary hypertension to manage their depression or low mood.

21 June 2023

Marking a year since CTEPH surgery

PHA UK member Paul Sealey is gearing up to mark one year since life-saving surgery by running a half marathon for our charity.  

6 June 2023

PHA UK resources earn another prestigious quality mark

Following a rigorous assessment, our information resources have been re-certified with a Patient Information Forum (PIF) quality mark for the third year running.

9 May 2023

End-to-end for people with PH

Two ambitious supporters will travel the entire length of the UK in support of our charity this summer.

1 May 2023

Understanding more about the role of artificial intelligence in the diagnosis and management of PH

A new video answers common questions about the role of artificial intelligence in the diagnosis and management of PH.

28 March 2023

Putting patients at the centre of clinical trial design

The PHA UK has partnered with a health technology company to help make it easier for patients to take part in clinical trials.

13 March 2023

Audit confirms high standards of PH care in Great Britain

The latest National Audit of Pulmonary Hypertension has shown performance against national standards has returned to pre-pandemic levels – with specialist centres continuing to provide a high-quality service to patients. 

3 February 2023

New research to understand life with PH

A new survey by the PHA UK aims to uncover what it really means to live with pulmonary hypertension today.

4 January 2023

The true cost of the crisis

PHA UK research has shown a clear correlation between the cost-of-living crisis and declining health in the PH community.

13 December 2022

New issue of emphasis available now

The new issue of our award-winning member magazine is now available to read online.

1 December 2022

Promising results for new PAH drug

Sotatercept, which could be approved for use next year, has produced promising results in its latest clinical trial.

15 November 2022

How is the cost of living crisis affecting you?

We are conducting a survey amongst people with pulmonary hypertension in the UK, to find out exactly where the biggest challenges are.

27 October 2022

Important notice, please read: Potential scam calls to patients

We have been made aware of a potential scam whereby some patients are being called by someone pretending to be from their hospital or medication delivery company, asking for their card details to pay for medications.

13 October 2022

Making way for PH Day UK

On Friday 4th November we're bringing the UK's pulmonary hypertension community together, and with the theme of #OurVoicesMatter, we need everyone to make themselves heard.

4 October 2022

NEWS: Online exhibition aims to capture experiences of the pandemic

An online exhibition curated by the PHA UK will showcase memories and experiences of the pandemic, and submissions are being invited from across the PH community now.

3 August 2022

NEWS: National award for little PHighter Zac

The family of little PHighter Zac Gunn are still celebrating after he received a national bravery award last month.

12 July 2022

NEWS: Swim challenge will see PHA UK Chair go the extra mile

PHA UK Chair Dr Iain Armstrong is training hard for a special swim challenge that will see him complete a mile of the Serpentine Lake in London’s Hyde Park.

6 July 2022

NEWS: Tea party raises smiles and funds in memory of Keir

The family of a young boy who had pulmonary hypertension have raised over £3000 for the PHA UK during an event to celebrate his life.

30 June 2022

NEWS: Another quality mark for our resources

Following a rigorous assessment, our information resources have been re-certified with a Patient Information Forum (PIF) quality mark.

27 June 2022

NEWS: “I would do anything to support her”

Simon Dawson has been married to Claire for 12 years, supporting her through her journey with pulmonary hypertension. To mark Carers Week 2022, he has shared his experiences to raise awareness of the impact of the disease and the effect on the whole family.

9 June 2022

NEWS: New publication to help people live well with PH

Our new guide to palliative care aims to help people with PH understand how this type of care could help them and their families.

17 May 2022

NEWS: Study seeks to investigate ways of coping with PH

A new study is investigating the impact of PH on individuals and their caregivers, and whether 'self-compassion' can be a helpful way of coping.

3 May 2022

NEWS: Birmingham run will raise funds and awareness

A fundraising run in Birmingham will celebrate the life of a local woman who died from pulmonary hypertension.

13 April 2022

NEWS: World-first anxiety self-help programme now available from the PHA UK

The world's first self-help intervention designed specifically for people with pulmonary hypertension (PH) is now available to order for free.

29 March 2022

NEWS: Co-ordinated efforts to help PH patients in Ukraine

A coordinated effort between The Pulmonary Vascular Research Institute (PVRI) and industry partners aims to ensure pulmonary arterial hypertension patients affected by the war in Ukraine receive supplies of life-sustaining drugs.

20 March 2022

NEWS: Fixed term benefit reviews for people with long-term conditions in Scotland to end

People in Scotland claiming benefits for long-term health conditions like pulmonary hypertension will no longer need to endure fixed term reviews for their payments.

17 March 2022

NEWS: Survey seeks patient opinions on clinical trials

A new survey is aiming to discover what matters most to patients when it comes to taking part in clinical trials.

14 March 2022

Hallamshire Heroes take on hilly half marathon

Staff from the specialist centre in Sheffield will tackle 13.1miles for our charity this month.

9 March 2022

Our thoughts on the upcoming changes to covid rules

The Prime Minister has announced significant changes to COVID-19 regulations that will bring an end to all rules and restrictions in England.

22 February 2022

Specialist centre standards remain high

The latest data from the National Audit of Pulmonary Hypertension shows specialist treatment centres in Great Britain have maintained high standards through the COVID-19 pandemic.

21 February 2022

Supervised home exercise trial seeks participants with PH

People with PH are being invited to take part in an important trial testing the effectiveness of supervised home exercise programmes.

9 February 2022

People with underlying health conditions urged to sign up to COVID-19 antiviral study

Adults over the age of 50 or with an underlying health condition who test positive for COVID-19 are being urged to sign up for a world-first study into life-saving antiviral treatments.

25 January 2022

Green light for a ground-breaking study to maximise PH treatment results

A PHA UK-supported study using remote monitoring technology to help patients get the best results from their PH medication has received the go-ahead from funders.

21 December 2021

PHA UK website rated best in the world for information

A global study has named the PHA UK website the best quality PH association site in the world for information about pulmonary arterial hypertension.

15 December 2021

Report reveals impact of pandemic on UK’s PH community

Research by the PHA UK has revealed the full impact of the pandemic on people affected by pulmonary hypertension in the United Kingdom.

8 December 2021

Vaccine news: Boosters now available to over 40s in England

From today (22nd November) anyone in England aged 40 or over can book a COVID-19 booster jab.

22 November 2021

What a week!

We'd like to say a huge thank you to everyone who supported PH Awareness Week between 1st and 7th November.

1 November 2021

PHA UK co-founder receives prestigious national recognition

Dr Iain Armstrong was high commended for his work developing the EmPHasis-10 quality of life measure.

14 October 2021

Your right to rehab: Pledge your support for our campaign

Pledge your support for a new PHA UK campaign to ensure people with pulmonary hypertension get fair access to rehabilitation.

7 September 2021

Important message about blood test tube shortages

A statement from consultant pharmacist and PHA UK associate Dr Neil Hamilton.

2 September 2021

New web area to help with decisions around work

A new PHA UK web area has been launched to help people make decisions about working with pulmonary hypertension.

1 September 2021

Challenge dedication sheets now available

Wearable dedication sheets for people taking on fundraising challenges for the PHA UK are now available to order.

18 August 2021

Pet show fundraiser winners revealed

Following a week of public voting, the lucky winners of our online fundraising pet show have been revealed.

9 August 2021

Over 1000 responses to pandemic research surveys

Our surveys to understand the impact of the COVID-19 pandemic on the PH community have now closed, with over 1000 responses received.

2 August 2021

PHA UK co-founder shortlisted for national award

PHA UK co-founder and chair Dr Iain Armstrong has been named as a finalist in the ‘Innovations in your Specialty’ category of the Royal College of Nursing (RCN) Nursing Awards.

28 June 2021

New fundraisers launched for pet lovers

The PHA UK has launched two pet-themed fundraisers to appeal to animal lovers looking to support people with PH this summer.

14 June 2021

New research to understand impact of pandemic

The PHA UK has launched new research to understand the impact of the COVID-19 pandemic on people affected by pulmonary hypertension.

7 June 2021

Research reveals support for robotic heart proposal

A survey amongst the UK pulmonary hypertension community has shown overwhelming support for the development of a soft robotic heart that aims to reduce deaths from heart failure.

3 June 2021

New online group for people affected by loss due to PH

A new private Facebook group has been set up for those who have experienced loss due to pulmonary hypertension.

4 May 2021

The Oxford/AstraZeneca COVID-19 vaccine and blood clots: Understanding the latest information

Our reaction to the announcement that those under 30 will be offered alternatives to the Oxford/AstraZeneca COVID-19 vaccine.

8 April 2021

Song launched in celebration of Will

A song recorded by Will Acres just before his death from pulmonary hypertension has been released by his family to mark his birthday.

30 March 2021

Shaping the future of health and care

Members of the public are being urged to share their views on healthcare as part of an online listening event.

25 March 2021

Survey seeks thoughts on proposed study into PH treatment

The PHA UK has launched a new survey to help researchers who are looking at the use of cutting-edge remote monitoring technology to help patients get the best results from their medication.

18 March 2021

New issue of Emphasis now available

The spring 2021 issue of our member magazine is out now, available in print and online.

17 March 2021

New service to help our members through difficult times

Our new Listening Line gives members dedicated telephone time with a PH professional to talk through any worries or concerns.

26 February 2021

New resource to help people prepare for benefits assessments

A new resource, published by the PHA UK, aims to help people prepare effectively for their benefits assessment.

22 February 2021