First-hand experiences from people living with or affected by PH can help other people understand or come to terms with the condition.
Maybe you have PH yourself, or care for someone with the condition. You may want to share your coping mechanisms, offer advice to others going through similar experiences, or talk about how a diagnosis has affected your family.
We often feature first-hand experiences of PH in our member magazine and on our lifestyle website.
We also regularly produce booklets and guides, featuring people’s experiences of PH, so there are plenty of ways in which your story can help.
If you would like to share your experiences, please fill in the form below or email office@phauk.org.
Before we publish anything, we will ask you to confirm you are happy for your words and experiences to be used. You can do that on our story consent form, and you are free to withdraw your consent at any time.
Many voices are stronger than one. As well as sharing your story, you can help shape our work and the research we support:
Join our Feedback Forum — help us put people living with PH first by telling us what matters to you.
Join our Research Forum — be first to hear about research and survey opportunities you could take part in.
