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Category: Campaigns & policy

Treprostinil access finally equal across the UK

The PAH therapy treprostinil can now be considered as a treatment option across the whole of the UK, following a long campaign to update an NHS England commissioning policy.

2 September 2026

New survey aims to put patient voices at heart of benefit reform debate

The UK's disability and incapacity benefits system is now going through its biggest overhaul in over a decade, unfolding across several fronts at once.

14 July 2026

Find your voice: New poetry competition for the PH community

A new poetry competition launched by the PHA UK aims to help people in the pulmonary hypertension community explore the therapeutic benefits of writing.

31 March 2026

Making sense of the latest changes to benefit reforms

As part of a headline-grabbing debate in Parliament yesterday (1st July), there have been further changes to the government’s proposals to amend parts of the benefits system including Personal independence Payments (PIP) and Universal Credit (UC).

2 July 2025

Playing our part in the pathway

PHA UK Chair Dr Iain Armstrong took to the stage at a major health and care conference in June, as part of a panel discussing the NHS England Breathlessness Pathway.

13 June 2025

Proposed changes to the benefits system: Information for people with PH (updated)

On 18th March, the government announced proposals to change parts of the benefits system, including Personal independence Payments (PIP), which many people with pulmonary hypertension rely on. We have put together this information to help you understand what has been proposed, what it means for people with long-term health conditions, and what happens next.

20 March 2025