Living with PH – the results of our biggest ever survey


In 2016, 563 people affected by pulmonary hypertension shared their voices in our third major survey into what it’s  like to live with the serious condition.

The results show just how much it impacts upon the lives of patients and their loved ones:

  • 60% of respondents said PH has a major impact on their overall quality of life
  • 48% of patients waited over a year after first experiencing symptoms before being diagnosed, and 40% saw four or more doctors
  • 63% said financial worries have an impact on their lives
  • 87% said their PH treatment and management has improved their overall quality of life

“This is a vital piece of research into what it means to live with PH. This report helps people to both imagine and understand the lived experience of PH from an individual’s perspective.” – Iain Armstrong, Chair, PHA UK

Read the full report and watch the video below

A summary version is also available. Please contact the PHA UK office on 01709 761450 or email