We’re working with researchers to investigate the impact of PH on individuals and their caregivers, and whether ‘self-compassion’ can be a helpful way of coping.
The word self-compassion can mean different things to different people. For some, it means treating themselves with kindness, care and understanding. Self-compassion may be especially important when we are experiencing difficulties in our life.
For example, there is growing evidence suggesting self-compassion may help to buffer people from the effects of emotional difficulties, such as anxiety and depression, and we’re looking for people with PH and their caregivers to be part of this important new study.
The results will be used to help us better understand how people cope with the impact of PH, and inform possible treatments in the future.
Please note, the term ‘caregivers’ is used to describe anyone who supports someone living with PH. This could be a partner, family member or friend, and the support you provide could be emotional, physical or practical.
This research is being conducted in collaboration with Nottingham Trent University and Cardiff University and is being led by clinical psychologist Dr Gregg Rawlings.
Dr Rawlings has worked with PHA UK on similar research studies, including developing this valuable self-help programme which has now been made available to everyone. We’re very grateful to our members who played a part in this; getting involved in these studies really does make a difference!
This study into compassion and PH is for you if:
You will first be ask to read a Participant Information Sheet that will provide you with more information about the study. You will then be asked to complete a consent form before a series of questionnaires asking you about your demographics and expereinces of anxiety, depression, quality of life and self-compassion – if you are a caregiver, you will also be asked to complete a caregiving burden questionnaire.
The questionnaires should take approximately 20 minutes to complete.
We would also be grateful if you could also invite your caregiver if you yourself have pulmonary hypertension, or if you are a caregiver, invite the individual you support with pulmonary hypertension. This will provide us with vital information on how pulmoanry hypertension can affect both individuals with the condition and those who support them.
For more information or if you are interested in taking part in this study please click here.
If you have any questions please contact Dr Gregg Rawlings, at Gregg.Rawlings@NTU.ac.uk