Oxygen therapy and PH: Your thoughts and experiences

Here at the PHA UK we’re planning the production of information and resources to help people who are prescribed home oxygen as part of their pulmonary hypertension treatment.

To ensure our resources best meet your needs, we’re looking to speak to 10 people to understand more about the challenges faced by those on this therapy, and where the information gaps may be.

These one-to-one chats will take place via phone or video call, at a time to suit you.

We’re looking for people who:

• Have a diagnosis of pulmonary hypertension
• Have been prescribed oxygen for at least one year
• Use oxygen during the day (this may be in addition to overnight use)

We would like to speak to adults with PH, and parents or guardians of children with PH too.

If you would be interested in sharing your thoughts and experiences with a member of our team, please complete the form below and we will be in touch.

This is part of wider project to provide support to those prescribed oxygen. This work will include helping those who provide the oxygen – such as oxygen nurses – to understand more about the unique needs and challenges faced by those with PH.