Hear our voices

Marking World PH Day 2025 by making voices heard

Pulmonary hypertension affects people of all ages, and it’s vital that we encourage more understanding of this rare and challenging disease.

These are just a few stories from our UK community. Read their words, hear their voices, and let’s really listen to those who live with PH- wherever they are in the globe.

“PH affects the people around you too”

Chris's story

“If I could sum up my diagnosis journey in one word, it would be ‘unbelievable’”

Luciana's story

Hear our voices

Marking World PH Day 2025 by making voices heard

“PH affects the people around you too”

“If I could sum up my diagnosis journey in one word, it would be ‘unbelievable’”

“There are a lot of hidden costs with PH”

"I've learned how valuable life is"

“I cannot fault the support I’ve had for my CTEPH”

“Breathlessness has affected me psychologically in a massive way”

“Her illness has not stopped us living life”

“It was hard to stay positive with PH during the pandemic”

"PH has knocked my confidence"

"It took 8 years to get my diagnosis"

“The hardest part of living with PH is the frustration”

“PH is what we have, but it doesn’t have to be who we are”