PH Platform

An ENORMOUS thank you to everyone at Sheffield PVDU. The support I've received has been superb.
And I promise NOT to put the Radiologist through a half hour of Arctic Monkeys music if I ever have to have another similar scan!
Seriously – a big thank you. With the help of Sheffield and hopefully Papworth, I'll continue to live a happy life – even with CTEPH . Once again a BIG thank you Sheffield AND the PHAUK.

Thank you to the background team who have worked hard putting together PH Month. They are responsible for the publications we get, plus organisating our get togethers.
Also video man Jules, sorry I kept messing your microphone up. Not use to sitting still so long.

Massive thank you to the amazing PH team at GOSH who look after ALL the kids with PH in the whole of the UK; and more specifically have cared brilliantly for Emily over the last 11 years, from when she was tiny and cute to now – nearly an adult. It makes such a difference knowing that there is a dedicated team with an extremely high level of expertise and knowledge, who are all also really lovely people. Thank you!

Hi i would like to thank plumery hypertension uk forum for all there support and understanding

Thank you to everyone supporting those with PH and with Hope that research may bring a cure xx

On PH Day 2025 we take a moment to think and reflect on the amazing PH community both here at Royal Papworth and across the UK. And to also pay thanks to all the wonderful work the PHAUK does!
It is a truly humbling and inspiring area to work in, and we look to the future with hope and thanks for all of those who take part in Research both now and in the years to come. Together we really are stronger!

Dear Mr A and Mrs R,

Thank you for always being there for me. For always caring for me when I am having good days and bad days with my PH. For always trying to find ways to help me so I can still join in and learn. My friends are important to me and you show us all how to care and be kind to each other. This helps me a lot too.

I feel very lucky to have you as my teacher and TA and I love coming to school because of you.

Lots of love from,
Abbie xxx

I just wish to applaud the teams in various hospitals that have worked so hard with my daughter since her diagnosis last year.
Your professionalism and empathy is what has helped her to make informed choices and stay incredibly positive in what would otherwise be a very difficult situation for a mum with a young family .
Thankyou all

I cannot thank the PAH teams at Royal United Hospital Bath and The Royal Free Hospital in London enough for their care over the last 15 months.

I leave my young family at home in Devon each time in order to keep a sense of normality for my children. When I come up to both hospitals I always feel thoroughly cared for with compassion and always heard. I am able to find the strength to do this on my own because of you all! You happily answer my questions about treatments/ symptoms each and every time putting my mind at ease.

I have recieved all the treatments possible and I feel very lucky that things are looking OK. Not going to lie, at times it has felt like a rollercoaster but its been worth it as I'm now able to live PH wise with a sense of normality again. PH is the group no one wants to be a part of, but you all make it so much easier. You know who you are, thank you!😊

To my fellow PH warriors,

I’ve been living with pulmonary hypertension for nearly 18 years, and I know how tough this journey can be. There are hard days, but also moments of strength, courage, and hope that remind us who we really are.

Remember, PH is a part of us, but it doesn’t have to be who we are. We are so much more than this illness. We are dreamers, fighters, and survivors!

You are not alone in this. Keep holding on, keep believing, and keep being you!

All the best, Tess 💜

Wanted to say a HUGE thank you to my team at Sheffield, they’re brilliant, always at the end of the phone- it’s a huge relief knowing I have such a fab team behind me, helping me with the struggles I face, can’t thank you enough.

I love you so much and I don't know how I would cope with this condition without the help and support you give me. Thank you for being you

A big thank you always to my family and friends who support and guide me throughout my journey.

A big thank you to our PH Community who offer support and encouragement throughout.

A very big thank you to PHA UK for being there and offering support during my diagnosis, my operation and afterwards. Without this great team I wouldn’t have been able to share my story with others and I wouldn’t have got this far.

Lots of love always
Lou 💜 xx

Thank you to my family for their unwavering support and love.

Thank you to the Doctors and Nurse Specialists at my PH Centre for their faultless care during the past 13(!) years.

Thank you to the PHA UK for everything you do for the PH community.
Let's keep spreading awareness on this PH Day and every day !

Thank you for your time and effort and dedication to finding new medical treatments because of this you have helped my son live longer and all young people who have Ph from birth to have a fighting chance

For this I will be eternally grateful x

Thanks to my incredible team at Golden Jubilee you have been amazing.

Thanks to my now retired GP, Dr Taylor and my new GP, Dr Ward-Smith who continue to be amazing.

Thanks to my family for the continued support. Especially to Jamie who has been my absolute rock!!

We all understand that our medications are expensive but please don’t rule them out. As treatments improve we will take less of the other current medications which will save money. Our disease is rare and a tough one to live with.

I would also ask those that produce pumps to think about where we are with technology and about the patients who have to wear them all the time.

Could these pumps be redesigned to make them easier to live with and less like a 1980’s Walkman.

I'm always incredibly inspired and humbled by the strength, resilience and positivity I see from people affected by PH, whether that's patients, their family or friends. It might be a community that no one would choose to be in, but it's an amazing community to be part of. We truly are stronger together!

Thank you to the Pulmonary Hypertension Association UK for all of the great work you do in raising awareness about PH for those that are unaware and helping those affected by the condition find the right advice, information, care and support to those who are living with it or have recently been diagnosed.

On behalf of everyone in the PHA UK team, this public message is to let everyone affected by pulmonary hypertension know that we will always do our best to make your voices heard – on PH Day UK and on every other day of the year too!

Thank you to everyone who shares their stories, opinions and insights to help inform the work of our charity. We couldn’t do it without you.