#BreathlessNotVoiceless
Post some words on our online message wall to show your support for PH Day UK!
You can write anything you like (to anyone you like), but if you’re stuck for ideas, how about one of these?
Your words, your voice!
ADD YOUR MESSAGE NOW
For Everyone affected by PH, family and friends
Thank you to my family for their unwavering support and love. Thank you to the Doctors and Nurse Specialists at my PH Centre for their faultless care during the past 13(!) years. Thank you to the PHA UK for everything you do for the PH community. Let's keep spreading awareness on this PH Day and every day !
Thank you to my family for their unwavering support and love.
Thank you to the Doctors and Nurse Specialists at my PH Centre for their faultless care during the past 13(!) years.
Thank you to the PHA UK for everything you do for the PH community. Let's keep spreading awareness on this PH Day and every day !
For All those in research
Thank you for your time and effort and dedication to finding new medical treatments because of this you have helped my son live longer and all young people who have Ph from birth to have a fighting chance For this I will be eternally grateful x
Thank you for your time and effort and dedication to finding new medical treatments because of this you have helped my son live longer and all young people who have Ph from birth to have a fighting chance
For this I will be eternally grateful x
For Family, PH staff and local GP
Thanks to my incredible team at Golden Jubilee you have been amazing. Thanks to my now retired GP, Dr Taylor and my new GP, Dr Ward-Smith who continue to be amazing. Thanks to my family for the continued support. Especially to Jamie who has been my absolute rock!!
Thanks to my incredible team at Golden Jubilee you have been amazing.
Thanks to my now retired GP, Dr Taylor and my new GP, Dr Ward-Smith who continue to be amazing.
Thanks to my family for the continued support. Especially to Jamie who has been my absolute rock!!
For The powers that be
We all understand that our medications are expensive but please don’t rule them out. As treatments improve we will take less of the other current medications which will save money. Our disease is rare and a tough one to live with. I would also ask those that produce pumps to think about where we are with technology and about the patients who have to wear them all the time. Could these pumps be redesigned to make them easier to live with and less like a 1980’s Walkman.
We all understand that our medications are expensive but please don’t rule them out. As treatments improve we will take less of the other current medications which will save money. Our disease is rare and a tough one to live with.
I would also ask those that produce pumps to think about where we are with technology and about the patients who have to wear them all the time.
Could these pumps be redesigned to make them easier to live with and less like a 1980’s Walkman.
For The whole PH community
I'm always incredibly inspired and humbled by the strength, resilience and positivity I see from people affected by PH, whether that's patients, their family or friends. It might be a community that no one would choose to be in, but it's an amazing community to be part of. We truly are stronger together!
For PHA
Thank you to the Pulmonary Hypertension Association UK for all of the great work you do in raising awareness about PH for those that are unaware and helping those affected by the condition find the right advice, information, care and support to those who are living with it or have recently been diagnosed.
For Everyone affected by PH
On behalf of everyone in the PHA UK team, this public message is to let everyone affected by pulmonary hypertension know that we will always do our best to make your voices heard – on PH Day UK and on every other day of the year too! Thank you to everyone who shares their stories, opinions and insights to help inform the work of our charity. We couldn’t do it without you.
On behalf of everyone in the PHA UK team, this public message is to let everyone affected by pulmonary hypertension know that we will always do our best to make your voices heard – on PH Day UK and on every other day of the year too!
Thank you to everyone who shares their stories, opinions and insights to help inform the work of our charity. We couldn’t do it without you.