We’re planning an exciting new research project, to understand what can change during a year of having pulmonary hypertension.
PH365 will follow a cross-section of patients and their loved ones for 365 days, measuring clinical fluctuations, quality of life, disease changes and more.
This project will help medical professionals – and others – to truly understand what life is like for people with PH outside of the clinic.
Research will begin at the start of 2024 and there will many different ways to take part, with different levels of involvement.
We will be looking for individuals with PH and loved ones / carers too who are willing to complete questionnaires, engage in telephone interviews, complete video diaries, or share their thoughts over the course of the year.
Other methods of involvement will be developed, and we plan to include children with PH in this study too.
To register your interest, please complete the form below and we will contact you with more information when it becomes available.
Our privacy promise
At the PHA UK we take your personal data and your privacy very seriously. You can trust us not to sell, share or pass on your personal details. We think of the PHA UK as a family, built on trust and respect – and for that reason, your data will always be safe with us.
That’s a promise!