Would you like to help others understand the challenges that come with the symptoms of PH?

As part of this year’s PH Day UK activity, we’ll be sharing the results of our research into which symptoms affect people with PH most (you may remember completing the survey in April).

This is a valuable opportunity to raise awareness of the impact of the disease and help the general public – and others – to understand the challenges that come with it.  

We’re looking for 3 people from our PH community to share their experiences in a short film, and to take part in possible media opportunities.

Being part of this project will involve:

• A filmed chat with a member of the PHA UK team, where you will be asked about your symptoms and how they affect your life (this can take place at your home or at a venue nearby)
• Sharing your story as part of a press release which will be distributed to media outlets – and taking part in media interviews if they are secured.

Filming will take place during August or early September on a date and location to suit you.

We are looking for someone to share the impact of breathlessness, someone to share the impact of fatigue, and someone to share the impact of other symptoms too. We hope to show that PH can affect anyone by telling the stories of different people from different parts of the UK.

Please use the form below to tell us if you’d like to be part of this project, before Friday 25th July, and we will get back to you with further information. If you have any questions, please email mary@phauk.org.