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National audit of PH

Read our summary of the results.

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Living with PH survey...

The results of our biggest ever study are here.

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Expert advice on entitlements...

Our new guide helps you work out which benefits you could be entitled to – in a clear and accessible way.

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Living with PH...

Living with pulmonary hypertension (PH) can present a number of problems beyond those relating to hospital visits and treatments. These can include PH affecting your work-life, or day-to-day activities that are more difficult with PH.

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Win, win for you & us...

Join the PHA UK Lottery today and help raise vital funds to improve the lives of people with PH and help fund research. Play for as little as £1 a week, there’s thousands to be won!

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A big thanks from us...

Thank you to all our fantastic supporters around the UK who help raise funds and awareness for PHA UK. Do you fancy getting involved? Every penny helps our cause.

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New diagnosis? Join Us...

Join PHA UK and be part of a 3,000 strong national support network for patients & families.

Emphasis magazine

News, views tips & more...

Read the latest issue of EMPHASIS magazine – our free quarterly publication for PHA UK members.

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Join our social media chat

Whether you’re new to Twitter and Facebook or an expert, you’ll find lots to engage in and inspire you.

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Latest news from PHA UK

Travelling abroad with PH

Kay Yeowart MBE is the co-founder of PHA UK. Her son Lewis was diagnosed with pulmonary hypertension 20 years ago, aged 13, and the family have had many holidays together since. Here, Kay shares her tips for travelling abroad with PH and the steps to take to minimise the risks.

Sun, sponges and a ‘superb weekend’

The weather was firmly on our side for the first-ever PHact Finding and Fun Weekend for children with PH under the care of Great Ormond Street Children’s Hospital (GOSH).

Your data is safe with us

Today the new General Data Protection Regulation (GDPR) comes into force – a new data protection law to ensure your data is used properly and legally. So, we wanted to take this opportunity to let you know that at the PHA UK we take looking after our members’ data seriously.

Patient group welcomes decision to fund new rare disease drug in Scotland

PRESS RELEASE: Patient voices have helped secure the approval of a new drug designed to improve the lives of people affected by a rare, life-limiting disease in Scotland.

How you can help and get involved