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Category: Campaigns & policy

New issue of emphasis available now

The new issue of our award-winning member magazine is now available to read online.

1 December 2022

How is the cost of living crisis affecting you?

We are conducting a survey amongst people with pulmonary hypertension in the UK, to find out exactly where the biggest challenges are.

27 October 2022

Important notice, please read: Potential scam calls to patients

We have been made aware of a potential scam whereby some patients are being called by someone pretending to be from their hospital or medication delivery company, asking for their card details to pay for medications.

13 October 2022

The cost of living crisis and your health

Bearing the burden The cost-of-living crisis is affecting everyone in the UK, but those with pulmonary hypertension are facing a two-fold blow to their finances. As our 2019 research has already shown, the diagnosis alone results in loss of income for most – regardless of  the astronomical price hikes of recent months. This ‘double-whammy’ is […]

13 October 2022

NEWS: Co-ordinated efforts to help PH patients in Ukraine

A coordinated effort between The Pulmonary Vascular Research Institute (PVRI) and industry partners aims to ensure pulmonary arterial hypertension patients affected by the war in Ukraine receive supplies of life-sustaining drugs.

20 March 2022

NEWS: Fixed term benefit reviews for people with long-term conditions in Scotland to end

People in Scotland claiming benefits for long-term health conditions like pulmonary hypertension will no longer need to endure fixed term reviews for their payments.

17 March 2022