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Category: Our important updates

UPDATE: Blood tests for Ambrisentan, Bosentan and Macitentan

A message on behalf of the UK’s specialist centres PH patients have been shielded during the COVID19 pandemic.  Consequently in March, the UK centres all agreed to suspend blood testing for everyone prescribed an Endothelin receptor antagonist (Ambrisentan, Bosentan or Macitentan) .   The current government advice is for shielding to end on August 1st.  […]

3 July 2020

Our letter to Robert Jenrick, Secretary of State for Housing, Communities and Local Government

A few days ago we told you we had received a reply from Miriam Cates MP, in response to our letter calling for people with pulmonary hypertension not to be forgotten during the easing of lockdown restrictions. In it she told us she had written to Robert Jenrick, Secretary of State for Housing, Communities and […]

12 June 2020

Care needed by patients on the use of IV cleaning products

A letter from the UK’s specialist PH centres and the PHA UK As a result of the coronoavirus pandemic, there has been a huge rise in global demand for cleaning and hygiene equipment.  Shortages of gowns and masks have been well publicised in the media and everyone in healthcare has a duty to use protective […]

30 April 2020

Important notice – inaccurate letters from GPs

It has come to our attention today, 16th April, that some people with pulmonary hypertension are receiving letters from their GP surgeries advising they do not need to shield. These letters are out of date and should be ignored.  If you have pulmonary hypertension it is VITAL that you shield. We can absolutely confirm that […]

16 April 2020

An open letter from the National UK Pulmonary Hypertension Group

31st March 2020 The UK’s specialist pulmonary hypertension centres are here to offer support, advice and guidance during this coronavirus pandemic. Many face-to face-consultations have moved to telephone ones and you will be contacted by phone over the next few weeks if you have an upcoming appointment. We particularly want to emphasise that as a […]

31 March 2020