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Category: Treatment & research

Understanding the symptom burden of PH

Our new survey aims to understand the symptoms people with pulmonary hypertension struggle with most, so we can support them in the most effective ways.

2 April 2025

COMMENT: Nurse training school closure is a devastating and deeply disappointing decision that should be challenged

Last week, Cardiff University announced it will close its School of Nursing due to a funding shortfall.

4 February 2025

COMMENT: Move to enable GPs to make direct referrals for diagnostic tests

At the beginning of this week, the UK government announced plans to give GPs more authority by enabling them to make direct referrals for diagnostic tests related to a range of complaints including breathlessness – a key symptom of PH.

7 January 2025

An update on the ongoing Flolan supply issues

For the last few months, we’ve been working in collaboration with the specialist centres, homecare delivery companies, and drug manufacturers GSK to bring you regular updates on supply issues related to Flolan – which is also called epoprostenol. Following an update on 3rd December 2024, we can now confirm that there are full, safe stock […]

4 December 2024

What comes next for sotatercept?

Lots of people are talking about the first-in-class PH drug sotatercept, which has recently been approved for use in America. Here, PHA UK Chair Dr Iain Armstrong explains what happens next - and what will be considered when it comes to making decisions for the UK...

30 July 2024

Understanding attitudes towards the clinical frailty scale and its potential use in PH

Access our survey findings below Most people with PH in the UK will be familiar with EmPHasis-10 – a questionnaire that’s used in clinical care to measure the impact of pulmonary hypertension on someone’s quality of life, and help guide decisions around treatments and their impact on quality of life. We’ve been exploring whether another […]

24 April 2024