We've teamed up with Great Ormond Street Children's Hospital to publish a brand new printed resource to help schools understand more about pulmonary arterial hypertension.
PAH & Pupils, available now, is designed for educational establishments that teach a child with the condition - providing important information that can be used by all staff.
It includes the voices of real children living with PAH, who share the challenges they can encounter at school, and expert advice to make things easier for them. As well as highlighting the facts about the disease and how it impacts young people, the booklet provides practical tips on supporting pupils, and guidance on how to spot when something may be wrong.
Individual copies can be ordered now for free. Bulk orders can be placed by emailing hello@phauk.org.
We've teamed up with Great Ormond Street Children's Hospital to publish a brand new printed resource to help schools understand more about pulmonary arterial hypertension.
15 September 2025It has been announced today, 27th August, that at this stage the new PAH treatment sotatercept will not be commissioned for use by NHS England.
27 August 2025Saturday 9th August saw a very special gathering in Birmingham, as over 100 PHA UK members came together for a day of learning, connecting, and celebrations.
10 August 2025As part of a headline-grabbing debate in Parliament yesterday (1st July), there have been further changes to the government’s proposals to amend parts of the benefits system including Personal independence Payments (PIP) and Universal Credit (UC).
2 July 2025PHA UK Chair Dr Iain Armstrong took to the stage at a major health and care conference in June, as part of a panel discussing the NHS England Breathlessness Pathway.
13 June 2025PHA UK members have helped secure funding for an innovative new patient toolkit that aims to help people manage their PH via a convenient app.
2 June 2025