It's a simple question, but one we've never asked before... Which symptoms do people with pulmonary hypertension feel they struggle with the most?
We've launched a new survey to help us understand the burden, and what impact they have on different aspects of life. The findings will help us focus our efforts to support our community in the most effective ways, and we'll be sharing them with the UK's specialist centres too.
Please share your experiences with us in these ways before Friday 18th April 2025.
Interested in the findings? Make sure you're subscribed to our free e-newsletter and we'll share the report as soon as it's available.
Our new survey aims to understand the symptoms people with pulmonary hypertension struggle with most, so we can support them in the most effective ways.
2 April 2025
On 18th March, the government announced proposals to change parts of the benefits system, including Personal independence Payments (PIP), which many people with pulmonary hypertension rely on. We have put together this information to help you understand what has been proposed, what it means for people with long-term health conditions, and what happens next.
20 March 2025
Our new informal get-togethers are a chance to connect with others affected by PH in a welcoming and relaxed environment.
18 February 2025
We were shocked and dismayed to see comments from the Health Secretary Wes Streeting suggesting that organisations like ours should stop standing up for patients by lobbying government.
12 February 2025
The latest National Audit of Pulmonary Hypertension shows continuing strong performance by the UK’s specialist centres.
7 February 2025
Last week, Cardiff University announced it will close its School of Nursing due to a funding shortfall.
4 February 2025
