living with Pulmonary Hypertension

Help for anxiety & worry

Your chance to take part in important research

Your opportunity to help yourself and others

In collaboration with psychology researchers at the University of Sheffield, you have the opportunity to engage in an exciting research study using the world’s first self-help programme aimed at people with pulmonary hypertension.

The programme identifies and then gives you the skills and insight to manage your anxiety – which we know is common in people with pulmonary hypertension. Previous research shows that 50% experience clinical levels of anxiety, and at times, panic too.

We’re encouraging you to take part in an important research study to test the programme’s value and effectiveness, with the aim of making it available to all. It is your opportunity to help yourself, and also others in the future.


I’m really excited to hear just how beneficial it has been for those who have taken part so far. Because it’s already been so positive we are now able to widen the scope of people who can take part in this research. I would encourage you to consider taking part in this research study, it’s important for now and the future, your involvement will make a difference.

Dr Iain Armstrong, Chair, PHA UK


Read on for the opportunity to help both yourself and others…

What does the research involve?

There will be two groups in this research study. One group will be asked to work through a series of newly developed interactive workbooks (this is the intervention) based on a type of therapy called Cognitive Behavioural Therapy (CBT).

People in the second group may receive the intervention at a later date.

These interactive workbooks include information about PH and anxiety and how the two can interact, and a range of techniques and skills to help you to better understand and cope with symptoms more effectively.

These interactive workbooks have been extensively reviewed by a panel of people living with PH, to ensure they are the best they can be for the research study.

You will be asked to complete the four workbooks over a period of four weeks, in your own time at home. At the beginning, end and part way through the four-week period you will be asked to complete a short online questionnaire – and your answers will create a better understanding at how effective this programme is.

Taking part in the programme

To take part in the study we ask that you:

  • Are over 18
  • Have a diagnosis of pulmonary hypertension
  • Can read and write English

How do I apply to take part?

The first stage is to complete a series of questions. Please click here to apply.

If you have any questions about the study, please contact lead researcher Gregg Rawlings at g.rawlings@sheffield.ac.uk

**If you are struggling with anxiety, panic or worry but do not fit the criteria for this study please email us at office@phauk.org and we will talk you through the support that’s available**

CLICK HERE TO READ GREGG RAWLING’S THOUGHTS ON COMMON MISCONCEPTIONS ABOUT ANXIETY

Last medically reviewed: November, 2020 • Due for review: November, 2023