New research to understand impact of pandemic

The PHA UK has launched new research to understand the impact of the COVID-19 pandemic on people affected by pulmonary hypertension.

Three surveys aim to uncover the experiences of patients, parents of children with PH, and carers / loved ones too – capturing the voices of the wider PH community as well as those with a diagnosis.

Iain Armstrong, chair of the PHA UK, said: “We’ve all navigated the COVID-19 storm in different boats, and as a society we need to understand the impact of the last 18 months so that lessons can be learned. It’s essential that we capture the experiences of the PH community during this unprecedented time.

Last year, three months into the pandemic, we conducted important research to help us understand experiences of shielding – providing vital insight into the effects of the early stages of COVID-19. A year later, and 18 months since the virus reached our shores, it’s important to understand the wider picture.”

The PH community is being invited to share their thoughts before 31st July 2021, using the links below.

  • If you have pulmonary hypertension, please complete this survey
  • If you are the parent or guardian of a child with pulmonary hypertension, please complete this survey
  • If you live with someone with pulmonary hypertension (for example a partner or family member), please complete this survey

Last medically reviewed: June, 2021 • June, 2024