Share your story

Contact your local media, or share your experiences on our website

Sharing your story is a powerful way of helping more people understand pulmonary hypertension.

Make your voice matter by talking to your local newspaper, news website or radio station about your experiences of PH. It’s a great way to reach lots of people, and raise awareness of this rare disease.

We’ve put together this template email / letter, to make it as easy as possible for you to get in touch with journalists in your area. Please feel free to edit it to include anything relevant to your situation. We would advise you to contact them as soon as possible.

Please use the form below to let us know if you make contact, so we can look out for coverage:

I have contacted my local media

This will only be used to contact you further about this if we need to.

Share your story on our website!

If you’d like to tell us about your experiences of PH for an article on our website, please complete the form below and we will email you some questions. You can also submit a blog for publication by emailing We will share links to these stories and blogs via our social media channels, helping your voice be heard both inside and outside the PH community.

We’re looking for stories and blogs from family and friends as well as those with a diagnosis. Every voice matters…

Yes, I want to share my story for PH Day UK

What is your connection to PH?(Required)

A member of the PHA UK team will be in touch for further details
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