Introducing PH-CONNECT, a FREE members-only space for one-to-one chats
Have you ever found yourself thinking, ‘I just wish I could talk to someone who truly understands this’? Living with pulmonary hypertension can feel isolating at times. It’s a rare condition, and sometimes it seems like the rest of the world carries on without quite realising what day-to-day life can look like for you. Here at the PHA UK, we hear this all the time – and that’s exactly why we’ve created PH-CONNECT.
PH-CONNECT is a brand-new, members-only service designed to help you find and chat one-to-one with other people affected by PH. Whether you’re living with the condition yourself, caring for someone who is, or supporting a loved one, this space is for you.
Maybe you’d like to speak to someone else who’s on IV medication. Maybe you’re about to go through transplant assessment and would value hearing from someone who’s been there. Or perhaps your partner, parent or child has PH, and you’d really appreciate talking to someone who understands what it’s like to love and support someone with the condition. Whatever your reason, PH-CONNECT makes those conversations easier to start.
You can browse member profiles and search using different filters, such as type of PH, treatment, specialist centre, time since diagnosis, age, and more – helping you find someone whose experience feels close to yours. When you’re ready, simply click the ‘CONNECT’ button to start a private one-to-one chat.
1. Create your free account
You can do this here – it only takes a minute!
2. Build your profile
Share as much or as little as you feel comfortable with. The more you include, the easier it is for others to find you.
3. Explore PH-CONNECT
Browse other members and use the search filters to narrow things down – by PH type, age, specialist centre and more.
4. Hit ‘CONNECT’
When you spot someone you’d like to talk to, simply press the button and start chatting.
If one-to-one chatting isn’t your thing, don’t worry – our private Facebook groups are still going strong and remain a valuable place for shared conversations and support.
Because this is brand new, you may notice there are only a small number of profiles when you first join. Please don’t be discouraged – our community will grow as more members sign up. We’d encourage you to create your profile early and be part of building this supportive new space. The connections will come.
This is an exclusive benefit for PHA UK members only. It’s free to join our charity – simply click here to become part of the family!
If you have any questions or comments about this new service, please email hello@phauk.org
