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Category: Treatment & research

Putting patients at the centre of clinical trial design

The PHA UK has partnered with a health technology company to help make it easier for patients to take part in clinical trials.

13 March 2023

New research to understand life with PH

A new survey by the PHA UK aims to uncover what it really means to live with pulmonary hypertension today.

4 January 2023

NEWS: Study seeks to investigate ways of coping with PH

A new study is investigating the impact of PH on individuals and their caregivers, and whether 'self-compassion' can be a helpful way of coping.

3 May 2022

Self-compassion as a tool for understanding the impact of PH

In 2022, PHA UK members were invited to take part in a research study to see whether ‘self-compassion’ can aid better understanding of the impact of PH. Patients and carers volunteered their time and experiences, and the results will now guide the development of support mechanisms to help people cope with the disease. Clinical Psychologist […]

20 April 2022

NEWS: Survey seeks patient opinions on clinical trials

A new survey is aiming to discover what matters most to patients when it comes to taking part in clinical trials.

14 March 2022

Clinical trials: What matters to you?

PUTTING PATIENTS FIRST By taking part in clinical trials, patients play a vital role in researching new treatments for pulmonary hypertension – and it’s important their voices are heard when it comes to designing them. The PHA UK has an ongoing partnership with researchers from the University of Cambridge and Royal Papworth Hospital to ensure […]

11 March 2022