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Treprostinil access finally equal across the UK

The PAH therapy treprostinil can now be considered as a treatment option across the whole of the UK, following a long campaign to update an NHS England commissioning policy.

2 September 2026

Trusted PHA UK resources: Another year, another tick

Following a rigorous assessment, our information resources have been re-certified with a Patient Information Forum (PIF) quality mark for the sixth year running.

1 September 2026

New survey aims to put patient voices at heart of benefit reform debate

The UK's disability and incapacity benefits system is now going through its biggest overhaul in over a decade, unfolding across several fronts at once.

14 July 2026

Managing medicines in hot weather

Few places are escaping the heat right now, and it's important to ensure you're storing and managing your medications properly. Dr Neil Hamilton, Consultant Pharmacist in PH, has this advice:

13 July 2026
Attendees at the CRG conference

Behind the scenes in PH care planning

Twice a year, NHS specialists from across the UK gather to plan services for respiratory conditions including pulmonary hypertension – and whilst these Clinical Reference Group (CRG) meetings happen behind the scenes, they can have a big influence on the care patients receive at their centres.

25 June 2026

Flolan discontinuation confirmed – but patients are not at risk

The manufacturers of PAH treatment Flolan have confirmed it will be discontinued in the UK from 2028, and plans are being put in place to move patients to alternative medications over the next two years.

11 June 2026