1st May 2024 Dear Mel Stride, Re. Proposed reforms to Personal Independence Payments I am writing to you as Chair of the Pulmonary Hypertension Association (PHA UK), a charity supporting people with the life-limiting disease pulmonary hypertension (PH). On behalf of those affected by this devastating condition, I’d like to formally express our dismay at […]
1 May 2024Access our survey findings below Most people with PH in the UK will be familiar with EmPHasis-10 – a questionnaire that’s used in clinical care to measure the impact of pulmonary hypertension on someone’s quality of life, and help guide decisions around treatments and their impact on quality of life. We’ve been exploring whether another […]
24 April 2024
‘PHoenix’ is an innovative new trial testing how well PAH drugs can be personalised for patients – and it’s set to roll out across more of the UK’s specialist centres soon. We spoke to Dr Frankie Varian of the Sheffield Pulmonary Vascular Disease Unit to find out more about the study’s aims, and how it’s been shaped by patients from the start…
18 April 2024
Josh is an Advanced Pharmacist at the Scottish Pulmonary Vascular Unit and has been part of the service for six months, covering a colleague’s maternity leave. We caught up with him to talk teamwork, typical days, and crispy M&Ms…
15 April 2024
A new fundraiser launched by the PHA UK is aiming to get people active this Spring.
3 April 2024
A trio of nurses from the Sheffield Pulmonary Vascular Disease Unit are taking on a hilly half marathon for our charity.
25 March 2024
