Here at the PHA UK we’re working with medics and researchers to ensure patients are at the centre of chronic thromboembolic pulmonary hypertension (CTEPH) service development.
CTEPH is the only type of PH that may be cured – through pioneering surgery called a pulmonary endarterectomy (PEA) or sophisticated procedures called balloon pulmonary angioplasty (BPA). It can also be treated, although not cured, via medication. Some patients may receive a combination of these treatments.
Whilst this treatment landscape has progressed, with many options now available, there has been limited patient and carer engagement on preferences – and this needs to change.
This collaborative project aims to put patients at the very centre of the decision process, with the aim of helping to shape UK NHS service development over the next decade and beyond.
We want to know what matters to you and your loved ones when it comes to making choices about treatment, and what influences those decisions. We want to make sure your voices are heard.
