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Category: Campaigns & policy

Standing up for unpaid carers

The PHA UK is backing a national campaign to address the financial hardship faced by many unpaid carers.

11 February 2021

Standing up for those with rare diseases

We are proud to be signatories on a letter calling for those with rare diseases like PH to be recognised as part of Government's Comprehensive Spending Review.

27 October 2020

Sheffield nurses drop pounds for pounds in support of rare disease charity

PRESS RELEASE: A pair of Sheffield nurses have raised over £1700 for a rare disease charity after taking on a sponsored slim during the coronavirus crisis.

18 June 2020

Our letter to Robert Jenrick, Secretary of State for Housing, Communities and Local Government

A few days ago we told you we had received a reply from Miriam Cates MP, in response to our letter calling for people with pulmonary hypertension not to be forgotten during the easing of lockdown restrictions. In it she told us she had written to Robert Jenrick, Secretary of State for Housing, Communities and […]

12 June 2020

Raise awareness with us on World PH Day

World PH Day takes place on Tuesday 5th May with the aim of bringing global attention to pulmonary hypertension.

1 May 2020

Important notice – inaccurate letters from GPs

It has come to our attention today, 16th April, that some people with pulmonary hypertension are receiving letters from their GP surgeries advising they do not need to shield. These letters are out of date and should be ignored.  If you have pulmonary hypertension it is VITAL that you shield. We can absolutely confirm that […]

16 April 2020