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Category: Campaigns & policy

Important notice – inaccurate letters from GPs

It has come to our attention today, 16th April, that some people with pulmonary hypertension are receiving letters from their GP surgeries advising they do not need to shield. These letters are out of date and should be ignored.  If you have pulmonary hypertension it is VITAL that you shield. We can absolutely confirm that […]

16 April 2020

An open letter from the National UK Pulmonary Hypertension Group

31st March 2020 The UK’s specialist pulmonary hypertension centres are here to offer support, advice and guidance during this coronavirus pandemic. Many face-to face-consultations have moved to telephone ones and you will be contacted by phone over the next few weeks if you have an upcoming appointment. We particularly want to emphasise that as a […]

31 March 2020

Emphasis scoops Gold – for the second time!

The PHA UK's member magazine, Emphasis, has won a prestigious communications award - for the second time.

27 November 2019

PH Week highlights emotional impact of pulmonary hypertension

PRESS RELEASE: People living with the rare lung disease pulmonary hypertension experience high levels of isolation and anxiety and lowered self-confidence, according to new research.

29 October 2019

Rare disease charity shows support for transplant games

PRESS RELEASE: A charity that supports people with the rare disease pulmonary hypertension has announced its sponsorship of two major sporting events for transplant recipients.

12 June 2019

“It is so important to discuss organ donation and share your wishes about it with your family”

In our final guest blog for PH Awareness Week, transplant recipient Kath Graham has this important message for everyone. 

28 October 2018