PH Supporter • Pledged 2024
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will be going to my Gp and other drs I see to emphasise PH 🙏
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I would tell other PH warriors that together we’ve got this!
I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible. In memory of our son Will, who tragically died aged 22 after having being diagnosed with IPAH
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will show people it is ok have bad days and that we can be strong and pick ourselves up. Always remember to talk and let others help you too
I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible by my crowdfunding page as I've been cured from PH. This is following on from my fundraiser last month.
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will live my best life and be here to support fellow sufferers if they need my help. I will raise awareness for my linked health care providers such as my GP and colleagues working in health care professions.
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will share my experiences with my healthcare professional colleagues to raise awareness of the need to #thinkpulmonaryhypertension when assessing patients and considering referral.
I will share my experiences of pulmonary arterial hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will explain about RHC and living with my epoprostinal infusion. I will be in pain I will turn blue from time to time but I am still me and I will live my life to the fullest I can manage which will be difficult and different each day.
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. Most of all show people you can still live life to the fullest 💕
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. Subject to getting a clean bill of health on my classic car, I plan to set up a Charity Drive with it from John O'Groats to Lands End and promote the PHA and all they do.
I promise I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I have a TikTok account dedicated to the condition and have helped lots of people understand more about this condition
I promise to continue advocating for our membership and supporting all of those affected by PH; patient, family, loved ones alike.
I promise to always do my best to raise awareness of PH, advocate for people with hidden disabilities, and encourage understanding of rare diseases.