Today, 29th May 2020, we have sent the below letter to Miriam Cates, MP for the constituency in which the PHA UK is based. Dear Miriam Cates, Question on behalf of people with the serious lung disease pulmonary hypertension I am writing to you as Chair of a rare disease charity based in Chapeltown, part […]
29 May 2020Updated 3rd June 2020 We have discovered that some people with pulmonary hypertension have been receiving notices advising them they no longer need to follow government advice to shield. These notices have come via a text message from the National Shielding Service or a letter from a GP practice. The notices state that consequently, food […]
27 May 2020
World PH Day takes place on Tuesday 5th May with the aim of bringing global attention to pulmonary hypertension.
1 May 2020A letter from the UK’s specialist PH centres and the PHA UK As a result of the coronoavirus pandemic, there has been a huge rise in global demand for cleaning and hygiene equipment. Shortages of gowns and masks have been well publicised in the media and everyone in healthcare has a duty to use protective […]
30 April 2020It has come to our attention today, 16th April, that some people with pulmonary hypertension are receiving letters from their GP surgeries advising they do not need to shield. These letters are out of date and should be ignored. If you have pulmonary hypertension it is VITAL that you shield. We can absolutely confirm that […]
16 April 20209th April 2020 The below update comes from Dr John Cannon, director of the PH service at Royal Papworth Hospital “After the National PH Centres Directors’ submission to NHS England, PH patients have been recognised in the extremely vulnerable group of patients. A letter will be sent out from each individual PH centre to this […]
9 April 2020
