A message on behalf of the UK’s specialist centres PH patients have been shielded during the COVID19 pandemic. Consequently in March, the UK centres all agreed to suspend blood testing for everyone prescribed an Endothelin receptor antagonist (Ambrisentan, Bosentan or Macitentan) . The current government advice is for shielding to end on August 1st. […]
3 July 2020
PRESS RELEASE: A pair of Sheffield nurses have raised over £1700 for a rare disease charity after taking on a sponsored slim during the coronavirus crisis.
18 June 2020A few days ago we told you we had received a reply from Miriam Cates MP, in response to our letter calling for people with pulmonary hypertension not to be forgotten during the easing of lockdown restrictions. In it she told us she had written to Robert Jenrick, Secretary of State for Housing, Communities and […]
12 June 2020
World PH Day takes place on Tuesday 5th May with the aim of bringing global attention to pulmonary hypertension.
1 May 2020A letter from the UK’s specialist PH centres and the PHA UK As a result of the coronoavirus pandemic, there has been a huge rise in global demand for cleaning and hygiene equipment. Shortages of gowns and masks have been well publicised in the media and everyone in healthcare has a duty to use protective […]
30 April 2020It has come to our attention today, 16th April, that some people with pulmonary hypertension are receiving letters from their GP surgeries advising they do not need to shield. These letters are out of date and should be ignored. If you have pulmonary hypertension it is VITAL that you shield. We can absolutely confirm that […]
16 April 2020
