PRESS RELEASE: People living with the rare lung disease pulmonary hypertension saw their physical health deteriorate whilst shielding, according to a new report.
1 November 2020
We are proud to be signatories on a letter calling for those with rare diseases like PH to be recognised as part of Government's Comprehensive Spending Review.
27 October 2020
Dr Iain Armstrong was named ‘Respiratory Nurse of the Year’ at the British Journal of Nursing (BJN) Awards.
4 September 2020A message on behalf of the UK’s specialist centres PH patients have been shielded during the COVID19 pandemic. Consequently in March, the UK centres all agreed to suspend blood testing for everyone prescribed an Endothelin receptor antagonist (Ambrisentan, Bosentan or Macitentan) . The current government advice is for shielding to end on August 1st. […]
3 July 2020
PRESS RELEASE: A pair of Sheffield nurses have raised over £1700 for a rare disease charity after taking on a sponsored slim during the coronavirus crisis.
18 June 2020A few days ago we told you we had received a reply from Miriam Cates MP, in response to our letter calling for people with pulmonary hypertension not to be forgotten during the easing of lockdown restrictions. In it she told us she had written to Robert Jenrick, Secretary of State for Housing, Communities and […]
12 June 2020
