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Sheffield nurses drop pounds for pounds in support of rare disease charity

PRESS RELEASE: A pair of Sheffield nurses have raised over £1700 for a rare disease charity after taking on a sponsored slim during the coronavirus crisis.

18 June 2020

Our letter to Robert Jenrick, Secretary of State for Housing, Communities and Local Government

A few days ago we told you we had received a reply from Miriam Cates MP, in response to our letter calling for people with pulmonary hypertension not to be forgotten during the easing of lockdown restrictions. In it she told us she had written to Robert Jenrick, Secretary of State for Housing, Communities and […]

12 June 2020

Standing up for those who are shielding: An update

Earlier this month, we wrote to Miriam Cates, MP for the constituency in which the PHA UK is based. We asked how, as restrictions start to lift, the Government is going to ensure that those still shielding are recognised within the strategy to ending UK lockdown. You can read our letter here. Today, 9th June […]

9 June 2020

Standing up for those who are shielding

Today, 29th May 2020, we have sent the below letter to Miriam Cates, MP for the constituency in which the PHA UK is based. Dear Miriam Cates, Question on behalf of people with the serious lung disease pulmonary hypertension I am writing to you as Chair of a rare disease charity based in Chapeltown, part […]

29 May 2020

Important notice – inaccurate updates about requirements to shield

Updated 3rd June 2020 We have discovered that some people with pulmonary hypertension have been receiving notices advising them they no longer need to follow government advice to shield. These notices have come via a text message from the National Shielding Service or a letter from a GP practice. The notices state that consequently, food […]

27 May 2020

Raise awareness with us on World PH Day

World PH Day takes place on Tuesday 5th May with the aim of bringing global attention to pulmonary hypertension.

1 May 2020