Share your story for PH Awareness Week

One of the most effective ways of raising awareness of PH is by sharing your own experiences – either as someone diagnosed with PH, or as a family member / loved one.

You can share your story for PH Week in the following ways:

Write a blog for our website

Please email and we will talk you through the process or send you some questions to answer. You can talk about any aspect of PH, and your blog will be published on our website and shared via our social media channels. If you have your own blog, please share your post with us and we will direct people to it.

Make your own video

Film yourself, or ask someone to do it for you. All you need is a smartphone! Tell the camera how PH affects you and your life, and email the video to or contact us for a number to share via WhatsApp. We’ll share your video online to help more people understand this condition.

Contact your local media

Your local newspapers, news website and radio / TV outlets may be interested in sharing your story and it’s a great way of telling lots of people about PH.

You can use this template email or letter text to contact them.

Top tips:

  • Get in touch with them during October if possible – don’t leave it until PH Awareness Week itself.
  • Send a good quality photo of yourself with your email or letter. The media will always want to use a photo with a story.
  • Don’t forget to include your contact details so a journalist can talk to you for more details.

If you would like to share your story in another way, please email