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Written on 25th May 2018
Today the new General Data Protection Regulation (GDPR) comes into force – a new data protection law to ensure your data is used properly and legally. So, we wanted to take this opportunity to let you know that at the PHA UK we take looking after our members’ data seriously.
Written on 07th May 2018
PRESS RELEASE: Patient voices have helped secure the approval of a new drug designed to improve the lives of people affected by a rare, life-limiting disease in Scotland.
Written on 16th April 2018
A campaign to get people up, dressed and moving whilst in hospital has been launched by England’s top nurse.
Written on 13th April 2018
Patients with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) are now able to benefit from a pioneering procedure that uses tiny balloons to inflate and compress blockages in the blood vessels.
Written on 09th April 2018
Helen Crabtree is Senior Office Administrator at the PHA UK, based at our Resource Centre in Sheffield. A key part of the small office team, Helen is often the first person you will speak to when you contact the charity.
Written on 22nd March 2018
PRESS RELEASE: A student from Emsworth has launched an egg-themed Facebook challenge to raise awareness of the rare disease that took the life of her brother.