If you are struggling

If you are struggling with the cost-of-living crisis, you are not on your own.

Firstly, it is always worth checking if you may be entitled to benefits or charitable grants – and you can do this online right now via the PHA UK website. You can access a grants search tool here, and a benefits calculator here.


The UK Government’s cost of living support includes income and disability benefits, bills and allowances, childcare, housing, and travel.

Click here to see what’s available and keep up-to-date with the Energy Price Guarantee.


The following organisations can provide practical advice on financial matters relating to the cost of living:


Click here for advice on maximising income via grants, benefits or local schemes, and managing your budget.

Helpline:  0808 802 2000


Click here for sources of help, and what to do if you’re finding things difficult.

Helpline: 0808 223 1133


Click here to find out what to do if you need emergency help.

Helpline: 0800 138 1111


Click here to access free energy and water advice, specifically for disabled people

PHA UK support can help you through this time

Help to manage anxiety

‘Overcoming Worry & Anxiety’ is our free, four-week programme consisting of a series of workbooks based on Cognitive Behavioural Therapy (CBT), to help you take control of problematic worry and anxiety. Find out more and order free online here.

A listening ear

Our Listening Line is manned by former PH nurse Paul Sephton, and whilst he is unable to give financial advice, he can help with emotional problems you may be experiencing as a result of the crisis.  You can make an appointment to speak to Paul here.

Support from people who understand

Our private Facebook groups are a valuable source of support and advice from other people affected by PH.

PHA UK Official Facebook group

This is our original forum, which now has almost 2,000 members. It’s a very active group, with responsive members who offer advice and support at all times of the day and night. Request to join here

PHA UK Official Carers Group

This forum is exclusively for family members, loved ones, and anyone who provides care or support for someone with pulmonary hypertension. Set up in 2021, it is growing to become a valuable source of connection. Request to join here

You can find links to charities specialising in mental health support here