Driving with pulmonary hypertension In 2019 the DVLA updated its medical guidance meaning you MUST NOW INFORM THE DVLA if you have a diagnosis of pulmonary hypertension. Please don’t worry – it is very rare for someone to lose their driving licence just because they have PH. The quickest way of informing the DVLA is to complete this PAH1 medical form and send it to them. On receipt of the PAH1 form, providing the answers you have provided don’t show any cause for concern regarding your fitness to drive, a medical questionnaire will be sent to your consultant for confirmation of how the condition is affecting you. You should still be able to drive during this time. Depending on the information provided by the doctor, you will then receive either a 1 year or 3 year driving license. Reminders are sent to drivers to renew their license in time for when they expire. You can also declare your pulmonary hypertension by calling 0300 790 6806 and telling the agent you are under the care of a specialist centre. When you call the DVLA, be sure to make a note of the date and time that you called, and keep this information in a safe place. What if I drive for a living? If you drive a large vehicle such as a HGV or bus, unfortunately you will be unable to drive until you have had an individual assessment, due to the additional risks associated with large vehicles. It is vital that you inform the DVLA if you are a professional driver. What if I have congenital heart disease? If you have congenital heart disease, you must also notify the DVLA but the advice remains the same. Please be aware that it can take a long time to hear back from the DVLA, often months, following a notification of PH. If you are concerned about whether you can drive whilst you wait, please click here for a guide to the rules.